Thank you for voting for International Mosaic Down Syndrome Association. For those of you who are coming here to vote for IMDSA, I believe the voting for this organization is over. With the new organizations trying to get in at the last minute, IMDSA is no longer in the voting process. Thank you for voting for IMDSA! 12/18/2007 12:08
I want to thank everyone who has been voting for International Mosaic Down Syndrome Association! The outpouring of support from all of you is so wonderful!With the donations that this could generate, IMDSA would be able to bring information to so many countries throughout the world who have absolutely no information on how to care for their children with mosaic Down syndrome.This information not only could help a child become successful despite their developmental delays, it could actually save these children's lives!Please continue to vote for IMDSA and help us make a difference in the world of mosaic Down syndrome! 12/17/2007 18:44
Please help us to reach these families throughout the world so they will know how to care for their children and get them the proper medical attention, so these babies can live full, productive lives.Please vote for IMDSA! 12/17/2007 17:05
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Thank you for voting for International Mosaic Down Syndrome Association! 12/15/2007 16:41
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Thanks for Voting!
Kristy Colvin 12/15/2007 11:02
I request every viewer to vote IMDSA headed by Kristy Colvin ,the cause is noble n deserves support by every one. I hear in India ,shall do my
best till my last breath .Long Live IMDSA. 12/15/2007 04:30
Having IMDSA there for my family has been a blessing! When we found out that Adde was born with MDS,my husband and I wanted and need information about MDS.Information for MDS is so limited. We went to a geneticist, family doctor, and even the Down Syndrome Clinic. Most of the answers we got, was we just don't know much about MDS,let's wait and see how she does. These doctors and even schools need to be more informed about MDS. Voting for this organization would help us spread awarness. PLEASE VOTE!!! 12/14/2007 09:22
It breaks my heart to know how many families throughout the world do not even know that International Mosaic Down Syndrome Association is here to help them! There are thousands out there who are raising their children without any information or support. And those who live in smaller countries have no idea about the important health checks their children need to survive!My son is now 21, but he lived half of his life without the Thyroid medication that he needed, only because no doctor knew to check for it. It was thankfully discovered, but when it was, it was almost too late! Thyroid disease is only one of the health problems that people with mosaic Down syndrome face. And, although deadly without proper treatment, the heart conditions that most babies with MDS are born with are even more life threatening than this.Please help us to reach these families throughout the world so they will know how to care for their children and get them the proper medical attention, so these babies can live full, productive lives. 12/13/2007 21:32
It wasn't until my son turned 2 that anyone raised any red flags about his development. His speech was behind so they ran some tests. The doctor called and said, "Your son has mosaic Down syndrome, a rare form of Down syndrome. I don't really know anything about it so you should make an appointment with a geneticist. Good luck to you." I looked online, I looked in books, but there was just a sentence here and there - nothing that told me how my son would grow up, what challenges we would face, and so on. That was, until I found IMDSA. This organization had a support group, research programs, conferences, outreach programs, etc. I will forever be indebted to the people who put their time and effort into this organization year after year, in hopes that there will less people who receive the diagnosis and don't know where to turn. I know the people at IMDSA work hard at helping families all over the globe have access to the help and information they need to help their children succeed in life and for no more than a pat on the back in return. For me, it was a God-send at such a scary fork in the road. Thank you IMDSA! 12/12/2007 21:20
The day our son was born and diagnosed with MDS we felt our world crash around us. For days and weeks we lived our lives surrounded by a dense black fog. We read books and searched the internet until finally finding the International Mosaic Down Syndrome Association. To be able to get information and most importantly support, has helped our family tremendously. We no longer feel alone, we no longer feel afraid and we are no longer suffocating under the thick black fog. With the help of the IMDSA the fog is clearing, the sun is shining and we see a glimpse of a blue sky. It may only be a glimpse now, but we know, with the help and support of our new family, that one day there will no longer be a cloud in sight. 12/11/2007 03:10
I truly support Kristy Colvin and International Mosaic Down Syndrome Association. IMDSA is making tjhe world a better place to live for these children and their families. 12/10/2007 15:04
IMDSA has helped me find out that there was a different version of Down syndrome and this is what my Austin has. I can't thank IMDSA enough for the love, support and information they have provided me in the past 6 months. I have found new friends not just for me but for both of my children, support that I never knew was out there. I couldn't understand my Austin without them, I wouldn't be able to fight for my Austin's education, or the learning tools he needs without them. Thank you so much IMDSA for being the "cyber" family that Trey, Austin and I needed. Please help our children by Voting! 12/10/2007 08:02
When my niece, Addelyn, was diagnosed with MDS, the information was limited on her diagnosis. The family searched the internet and read books until we came across IMDSA. The support and love that we receive from the organization is what helps to carry us to the next day. Please vote for this organization! 12/09/2007 18:58
IMDSA has been a blessing to our family. When our little Adam was born, we were very shocked by his diagnosis. When we tried to find information about his condition, there was absolutely nothing out there. Then we came across the IMDSA. We found a new family were everyone was experiencing the same things we were. The biggest gift they gave our family was hope for Adam's future. When he was born, we were very unsure of what the future held for him. At age 5, Adam has made many strides. We still don't know what the future holds for him, but whatever it may be, we know we have many friends at IMDSA to support us. Please vote for this organization. 12/09/2007 10:41
When I found out my daughter had Mosaic Down Syndome I felt like all of my dreams for my child had been lost. It was terrible living in a dreamless world. IMDSA helped me understand and guided me though my most difficult times. I am now able to dream again for my child. As a parent of a child with MDS every day we worry about what tomorrow will hold for our child. Will she be able to walk,talk,or what illness will crop up. There is still so little know about this disroder. With more resourse and research we would be able to help our childrn so much more. Please help our children 12/09/2007 06:44
International Mosaic Down Syndrome Assocation is designed to provide support, information and research to those touched by mosaic Down sydrome. IMDSA is the only organization in the world dedicated to helping families and professionals better understand this rare birth defect.
Mosaic Down syndrome is a rare form of Down syndrome that affects 2-3% of the DS community. Before IMDSA, families of children with MDS had never met another family experiencing the same issues. www.imdsa.com
